Advancing VEDS Research
Join the Fight Against Vascular Ehlers-Danlos Syndrome
Donations
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We are a certified 501c3 organization, EIN is 99-1144492
Our Mission
The Matthew Rau VEDS Foundation is dedicated to increasing awareness of Vascular Ehlers-Danlos Syndrome (VEDS) and expanding research to save lives and improve the quality of life of individuals living with VEDS. Our organization was founded in memory of the owners' brother who passed away from VEDS, and our main challenge is promoting awareness of this rare condition to prevent similar tragedies in the future. We offer services and activities to support our cause and educate medical professionals.
Fundraising Events
Our first memorial event at Rockland Lake on September 15, 2024 wouldn't have been possible without the support of everyone who contributed and participated. We received an outpouring of support beyond our expectations. We would like to thank our half mile sponsors, those who've donated $100, and half mile plus sponsors, those who've donated over $100, and in addition we'd like to thank all of the dozens of folks who've donated any amount; your contributions and support will help make our mission possible.
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1/2 Mile Sponsors:
Beth Schmidt
Bob & Michelle Gildea
Bobby Gildea
Bonnie Gildea
Brittany Gildea
Chris Arrighi
Christina Dest
Christine Vasti
Dario Mazurek
Don Buckley
Eun Park
Gary Dworkowitz
J Paneto
Jackie Monaghan
Jennifer Rau
Jerry Zurla
Jessica Lee Ramsay
Julie & John Bubenko
Kaitlyn Rau
Kathy Dapolito
Katrine Eriksen
Kim Matera
Mari Call
Marie Ostman
Mary Hoffman
Melissa Rau
Nancy & Bill Phillips
Nancy Leyden
North Rockland Hockey
NRHS English Department
Peggy Varieur
Richard Hasselbach
Robert Martinez
Sal & Sandi Messina
Stephen Carey
Susanna Rivera
The Croyle Family
The Heaphy Family
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​1/2 Mile Plus Sponsors:
Alvin Balchan
Barry Baloga
Citizens for Jim Monaghan
Dan Masiello
Debra Ramsay
Gerald & Patty Rau
Howard & Arlette Phillips
Kelli Rau
Lauren's Dream
Mike & Donna Waldron
Tom & Joan Rau
Tom & Joanne Zayac
Tom & Marcia White
Tommy Phillips
Trish LaCour
Vincent & Bernadette Abbatecola
Our Programs
Volunteer Opportunities
Interested in making a difference in the lives of those affected by VEDS? Our Volunteer Opportunities offer a powerful way to get involved and support our mission.
Research Funding
The Matthew Rau VEDS Foundation is committed to funding cutting-edge research to advance the understanding and treatment of VEDS.
Community Outreach
We believe in the power of community to effect positive change. Our Community Outreach initiatives aim to raise awareness of VEDS and provide support to those affected by the condition.