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Help Raise Awareness of Vascular
Ehlers-Danlos  Syndrome

Make a donation

Your love and support are greatly appreciated.
We are a certified 501(c)(3) tax-exempt organization, EIN is 99-1144492.

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Our Mission

The Matthew Rau VEDS Foundation is committed to raising awareness of Vascular Ehlers-Danlos Syndrome (VEDS) and advancing research efforts to save lives and enhance the quality of life for those affected by this condition. Established in honor of the founders' brother who lost his life to VEDS, our primary goal is to increase awareness of this rare condition to help prevent similar tragedies in the future. We engage in various activities to support our mission and strive to further educate medical professionals.

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Fundraising Events

Our first memorial event at Rockland Lake on September 15, 2024 wouldn't have been possible without the support of everyone who contributed and participated.  We received an outpouring of support beyond our expectations.  We would like to thank our half mile sponsors, those who've donated $100, and half mile plus sponsors, those who've donated over $100, and in addition we'd like to thank all of the dozens of folks who've donated any amount;  your contributions and support will help make our mission possible.  

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1/2 Mile Sponsors:                       

Beth Schmidt                               

Bob & Michelle Gildea                 

Bobby Gildea                               

Bonnie Gildea                               

Brittany Gildea                             

Chris Arrighi                                  

Christina Dest                               

Christine Vasti                              

Dario Mazurek                             

Don Buckley                                 

Eun Park                                       

Gary Dworkowitz                         

J Paneto                                       

Jackie Monaghan                        

Jennifer Rau                                 

Jerry Zurla                                    

Jessica Lee Ramsay                     

Julie & John Bubenko                    

Kaitlyn Rau                                      

Kathy Dapolito

Katrine Eriksen

Kim Matera

Mari Call

Marie Ostman

Mary Hoffman

Melissa Rau

Nancy & Bill Phillips

Nancy Leyden

North Rockland Hockey

NRHS English Department

Peggy Varieur

Richard Hasselbach

Robert Martinez

Sal & Sandi Messina

Stephen Carey

Susanna Rivera

The Croyle Family

The Heaphy Family

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​1/2 Mile Plus Sponsors:

Alvin Balchan

Barry Baloga

Citizens for Jim Monaghan

Clarkstown Reformed Church

Dan Masiello

Debra Ramsay

Gerald & Patty Rau

Howard & Arlette Phillips

Kelli Rau

Lauren's Dream

Mike & Donna Waldron

Tom & Joan Rau

Tom & Joanne Zayac

Tom & Marcia White

Tommy Phillips

Trish LaCour

Vincent & Bernadette Abbatecola

Our Programs

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Volunteer Opportunities

Interested in making a difference in the lives of those affected by VEDS? Our Volunteer Opportunities offer a powerful way to get involved and support our mission.

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Research Funding

The Matthew Rau VEDS Foundation is committed to funding cutting-edge research to advance the understanding and treatment of VEDS.

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Community Outreach

We believe in the power of community to effect positive change. Our Community Outreach initiatives aim to raise awareness of VEDS and provide support to those affected by the condition.

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